So I'm laying here in bed pondering what I ate today that could have been contaminated with gluten. I have the itchies, so I know it was something. My best guess is that the food that my future mother-in-law cooked must have been contaminated in some way. It's the only food I didn't prepare myself.
Raise your hands if you have dermatitis herpetiformis too! In my case, my first symptom to manifest, before the systemic and emotional symptoms. My whole life I had itchy dry patches of skin that wouldn't heal for months at a time. My mother was always told that it was eczema, but none of the treatments helped for long if at all. It was this that ultimately led me to a gluten free diet and later diagnosis of celiac disease.
I'm sure everybody's symptoms are slightly different, but I get little pustules that itch and pop and create a rash that won't heal. And, more distressing, the skin on and around my nipples flakes of and bleeds. I have had open wounds on various parts of my body that have lasted anywhere from 4 to 8 months without healing.
I started a new job in August and qualified for health insurance in December. As soon as I was able I started looking for a dermatologist who was in my network, and could see me quickly because my skin was really starting to bother me. Somehow I got lucky enough to find one who had actually heard of celiac disease and dermatitis herpetiformis and was able to prescribe something that helped. So for all of you that are looking for a solution in addition to a gluten free diet, I highly recommend this new solution. For the itch he gave me a hand full of samples of a new antihistamine called Xyzal. To help with the external manifestation I gave me a 2% topical steroid, Mupirocin, to be mixed with an antibiotic, Fluocinonide, mixed together and applied over affected areas twice daily.
Using this treatment all of my open sores, including those that were at least 4 months old, healed with in the two weeks till my next visit. Since my living arrangement makes it all too easy for me to eat slightly contaminated foods, having a solution like this is crucial. For the first time in my life I am open sore-free, and I'm actually beginning to get vain about all the scars I have from the past. (Whenever I go to get a pedicure I hear "ah, you go camping? Have mosquitoes?")
It's nice not to suffer from itching, open sores, since these easily start to send me into the gluten-induced emotional downward spiral. Knowing that I can head it off at the start helps enormously.